Awareness Month was a Marathon Success!

Darlene Donovan - banner

National Fragile X Awareness Month is a group effort. We prepare each July to unite and keep our communities informed about Fragile X, ensuring that one more doctor, one more teacher, one more neighbor knows about our cause and makes life easier for all families living with Fragile X.

This year we held our 3rd Annual Let ‘Em Know virtual 5K during National Fragile X Awareness month and it was a huge success! Together you raised $100,000. We couldn’t have done it without you! While many walked or ran on their own, we had a number of (CSN) groups take it to the next LEK5Klevel and incorporate actual on-site events. Not only did it provide an opportunity for local Fragile X families to gather, socialize and walk for a cause, but it created yet another great opportunity to spread awareness about Fragile X in a public place to many who might not have otherwise known about it. Thank you to everyone who ran, walked, hiked, biked and skated to our goal. And thank you to those who generously donated to the campaign.

The Let ‘Em Know Awareness Month campaign is our only peer-to-peer fundraising event. It helps us reach outside our Fragile X network and engage folks right in your local community. With your help we made it to our goal and, after final totals are counted, we may have even surpassed it!

The funds raised will further support the mission of the NFXF to unite the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Additionally, 50% of the funds raised by the Community Support Networks will stay right in their local community, allowing the groups to provide workshops, seminars, events and scholarships to local Fragile X families needing support. The Let ‘Em Know Awareness Month campaign not only has a local and national impact on the individuals and families we serve but also on the communities in which these folks live. Together we are making a difference!

Congratulations to the Winners of our NFXF Let ‘Em Know Event

Our two Grand Prize winners are:

  • Cheryl Lancaster who for the 2nd year in a row raised the largest amount for Let ‘Em Know in total, for a total of $9000! Amazing work!
  • Aimee Valencia who reached the most number of people with a total of 58 donations! Let ‘Em Know indeed!

Regional CSN Winners:

  • Congratulations to the Southwest and Central Regions who were the only two regions that had 100% CSN participation, each raising a minimum amount of $100. Each region will hold a drawing to select one CSN Leader to receive a complimentary 2016 International Fragile X Conference registration to San Antonio.

Top Three Fundraising Teams

Melissa Anne Etheridge ran away with the 5K raising over $9000. Not surprisingly, our top individual fundraiser also came from this same group, followed by the  who raised over $6000. Our third place team was not a Community Support Network group, but a team organized by an individual – a grandmother in NH who also crossed the finish line in record time raising nearly $6500 for the NFXF. 

2015 Let ‘Em Know Honor Roll

New this year! We would also like to recognize our 2015 Let ‘Em Know Honor Roll. These 22 individuals each raised over $1000 and will be given special recognition as we kick-off LEK2016 next year. Congratulations to: Anita Abraham-Inz, Courtney Blackmon, Kelly Coleman, Katie Bolin, Alexis Davis, Sophie Davis, Darlene Donovan, Paula Fasciano, Kara Frech, Steve Frech, Lisa Haran, Nick Henning, Dillon Kelley, Cheryl Lancaster, Nick Lunger, Andrew Murphy, Michelle O’Dell, Kimberly Powell, Shereen Ramos, Diane Southard, Susie Taylor, Carolyn Tomberlin, and Aimee Valencia.

These are just a few of the more than 300 participants, 115 teams and thousands of donors who contributed to making this Awareness Month a resounding success. We’re grateful for each and every one of you who truly Let ‘Em Know this year!


Kimberly PowellKimberly Powell
before joining the NFXF Team as the fundraising events manager, Kimberly wore many hats with the NFXF. Starting in 2004 with her son’s Fragile X diagnosis, Kimberly immediately joined the local support group in Georgia, organizing fundraisers and awareness events. She served as the local co-chair for the 2006 International Fragile X Conference. In 2009, she served on the Board of Directors and became the Community Support Network Leader for .