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So far NFXF has created 37 blog entries.

Now Accepting Applications for Summer Scholar Research Awards

Summer Research Grants Available for Students Researching Fragile X Deadline March 12, 2018 Each year, the National Fragile X Foundation funds one or more summer student’s research at $2500 each through the NFXF Summer Scholar [...]

By | 2018-02-01T12:08:13+00:00 Jan 31, 2018|Research|Comments Off on Now Accepting Applications for Summer Scholar Research Awards

Brief Social Skills Training for Boys with Developmental Disabilities

Who Can Participate? Boys between 8-18 years old diagnosed with an intellectual or developmental disability, ASD, or Fragile X Syndrome What Participation Involves:Visits to Stanford for 3–4 days; Cognitive testing Behavioral skills training to improve social skills; Two optional 30-minute MRI scans

By | 2019-07-16T14:08:49+00:00 Jan 26, 2018|Opportunities for families, Research|Comments Off on Brief Social Skills Training for Boys with Developmental Disabilities

Call for Presentations now open for the 16th International Fragile X Conference

We are now accepting submissions for presentations at the 16th International Fragile X Conference to be held July 11-15, 2018 in Cincinnati, Ohio. Please be sure to submit by Tuesday, February 20, 2018 at Midnight [...]

By | 2018-01-22T19:59:45+00:00 Jan 12, 2018|Community, International Fragile X Conference|Comments Off on Call for Presentations now open for the 16th International Fragile X Conference

Participate in Market Research Opportunity

The NFXF is looking for 10 parents of children with a diagnosis of Fragile X syndrome, including both males and females, from all over the country, to participate in a market research opportunity related to [...]

By | 2018-01-10T15:56:28+00:00 Jan 8, 2018|Research|Comments Off on Participate in Market Research Opportunity

Northern California, help us serve you!

Recently, the Northern California Fragile X support group became the NFXF Northern California Chapter. Becoming a formal chapter of the National Fragile X Foundation provides us with many benefits that will help us better connect [...]

By | 2018-01-05T15:09:39+00:00 Jan 5, 2018|Northern California|Comments Off on Northern California, help us serve you!

Rockefeller University: Potential new treatment for Fragile X targets one gene to affect many

Above: Mouse brains with Fragile X Syndrome (lower) lose the ability to regulate proteins like Brd4 (green). Photo from The Rockefeller University. A new publication in the journal Cell describes efforts by two groups at Rockefeller [...]

By | 2017-11-20T14:58:10+00:00 Nov 20, 2017|Research|Comments Off on Rockefeller University: Potential new treatment for Fragile X targets one gene to affect many

Fun in the Sun in St. Louis!

August 29, 2017 - The Fragile X Resource Center of Missouri had some fun in the sun! Attendees enjoyed delicious BBQ, a dip in the pool, and lots of laughs at the home of Mike and [...]

By | 2017-09-19T10:57:44+00:00 Sep 5, 2017|St. Louis|Comments Off on Fun in the Sun in St. Louis!

Raise Fragile X Awareness with Our Printable Cards

Have you ever been in a situation where you needed a quick way to explain Fragile X to a stranger or acquaintance? Maybe there is an incident at the grocery store and some people begin [...]

By | 2018-10-03T14:55:09+00:00 Aug 23, 2017|Education|Comments Off on Raise Fragile X Awareness with Our Printable Cards

Clinical Trials From Start to Finish

Clinical research is a scientific investigation about human beings. It can be “interventional” (like the search for a new medicine) or “observational” (like filling out a questionnaire). Clinical research also involves people (no mice [...]

By | 2017-08-08T19:11:18+00:00 Aug 8, 2017|Research|Comments Off on Clinical Trials From Start to Finish

Advocacy Update: Local Meetings with Members of Congress

NFXF advocates are out in force during the August recess to meet with their Members of Congress and staff to raise awareness of Fragile X. They are discussing the public policy priorities of the [...]

By | 2017-08-08T14:23:04+00:00 Aug 8, 2017|Advocacy|Comments Off on Advocacy Update: Local Meetings with Members of Congress

CO: Fragile X Support Group

Colorado Fragile X Support Group Date: August 26, 2017 Time: 10:00 AM Location: Children's Hospital Colorado 13123 E 16th Ave Aurora, CO 80045 We will meet in the main hospital cafeteria, in the back. It [...]

By | 2017-07-19T19:05:22+00:00 Jul 19, 2017|Events, Front Range Colorado Events|Comments Off on CO: Fragile X Support Group
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