About Dan Whiting

Dan served as the NFXF Director of Community Impact from 2017 to 2022. He has over 23 years of experience in public policy and communications, including 11 years as a staff member for a U.S. Senator, in the Bush Administration as Chief of Staff at an agency, and as a senior strategist for communication initiatives across the DOD. During his time at the NFXF, he was passionate about helping individuals with intellectual and developmental disabilities live better lives.

Congress Passes the RAISE Act

By |2018-01-10T17:43:11-05:00Jan 10, 2018|Advocacy, Advocacy Day|

Last night, Congress passed the RAISE Family Caregivers Act. The bill, introduced by Fragile X Caucus co-chair and parent, Rep. Gregg Harper, directs the Secretary of HHS to work with stakeholders from state and local [...]

Fishing for a Cure

By |2021-02-03T17:31:23-05:00Jan 9, 2018|AnythingForFragileX|

Joey Christoff’s son, Mitchell, has Fragile X syndrome, and his wife and mother-in-law are carriers at risk of Fragile X-associated disorders. Caring for them and giving hope to other families is what drives Joey [...]

Fragile X Pumpkin Carving Contest

By |2017-10-26T20:39:07-04:00Oct 26, 2017|Community|

The First Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it. The details: Carve a pumpkin [...]

FY18 CDC Funding

By |2017-07-10T16:20:27-04:00Jul 10, 2017|Uncategorized|

The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]

Proactive/Reactive Behavior Management

By |2017-08-08T15:59:14-04:00Sep 28, 2016|Braden on Behavior|

[mpc_image preset="preset_2" image="24873" margin_divider="true" margin_css="margin-bottom:10px;" image_size="700_thumb" image_opacity="100" effect="none" image_hover_opacity="100" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="1250" animation_in_delay="0"]Behavior management continues to be of tremendous importance to parents and professionals. Understanding the etiology of behavior in people with FXS is critical when creating [...]

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