NFXF Webinar Recap In case you don’t have time, or would prefer the information in written form, we are now providing NFXF Webinar recaps. These are summaries of the webinars, using paraphrases rather than [...]
Send a tribute, message or honor someone who has made a difference in your life. Highlight those living with Fragile X or those whom serve the Fragile X community.
In March, over 150 NFXF Advocates descended onto Capitol Hill to once again advocate for Fragile X and raise awareness among Congress. A top ask is to join efforts to support Fragile X programs at [...]
On Saturday, April 7th, 2018, parents, family members, researchers, and clinicians came together at Boston Children’s Hospital (BCH) to learn about behaviors and FXS, how to help individuals with Fragile X, and about ongoing medications [...]
St. John’s is seeking mothers to volunteer to participate in a study on the effectiveness of a parent training program for parents of children with Fragile X syndrome.