STAR: Local Advocacy

STAR (State Teams for Advocacy Results) is a local advocacy program to establish year-round relationships with Members of Congress (MOC) through visits to their home state and district offices.

Our STAR leaders are encouraged to reach out to members of the community (family members, CSN groups) to participate in this exciting effort.

Initiative Objectives

Provide an opportunity for Fragile X advocates unable to travel to Washington, DC to play a more active role in FX advocacy. Reinforcing the messages FX advocates carry on NFXFAD throughout the year.

Establish even stronger relationships with our MOC.

Allow siblings and self-advocates who may not be able to travel to DC to participate in FX advocacy.

Further educate our MOC about FX “up close and personal”.

Become a STAR

To find out if there’s a STAR in your area or for more information about becoming a STAR leader in 2016 contact Jeffrey Cohen at