Year after year during National Fragile X Awareness Month (July), an extension of Fragile X Awareness Day on July 22, we ask you, the Fragile X community, to share your stories. Here’s why:
Your stories help educate the public about Fragile X and inspire more research toward new treatments and an eventual cure.
But education and awareness goes beyond telling your friends, neighbors, classmates, or coworkers about Fragile X.
Picture this: Somewhere someone just found out their child has Fragile X syndrome. Or a doctor is quietly informing a patient of a Fragile X-associated premature ovarian insufficiency (FXPOI) or tremor/ataxia syndrome (FXTAS) diagnosis.
Somewhere someone will learn they’re a premutation carrier and wonder if they’ll be able to have the family they always wanted.