- Fragile X
- Treatment & Intervention
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Our funding requests to members of Congress on National Fragile X Foundation Advocacy Day Capitol Hill visits change each year depending upon the political climate and budgetary considerations. Our “asks” typically include:
The Collaboration to Promote Self-Determination (CPSD) advocacy movement is an informal network of nearly 20 national organizations that have come together to promote opportunities for those with intellectual disabilities. The National Fragile X Foundation is part of this network, and we invite you to learn more about the Collaboration to Promote Self-Determination.
Since 2000 the NFXF Public Policy efforts have established
Together, these programs represent nearly $11 million in new investment by the federal government in FX research and programming.
With the NFXF’s urging, strong congressional directives resulted in the National Institutes of Health nearly doubling its yearly investment — from $15 million to nearly $29 million — in basic science and translational research aimed specifically at bringing targeted treatments for FX to market.
Department of Defense – In the first year FX was included in the DOD’s Peer Reviewed Medical Research Program over $10 million in FX research was funded. FX continues to be on the short list of funded disorder.