UPDATED 5/10/17: Congress wrapped up the Fiscal Year 2017 appropriations – just seven months into the fiscal year. The legislation includes an additional $2 billion for the NIH, of which $40 million will go to the NICHD, where Fragile X research is funded. It also signals that Congress does not have an appetite to cut NIH funding 30%, as proposed in the President’s Fiscal Year 2018 budget outline.

Next up – Fiscal Year 2018, which is where our advocacy asks are focusing on. As a reminder, the “Dear Colleague” letter to House appropriators was sent on April 6, 2017. We expect the Senate letter to go out later this month. Our champions (Senators Isakson and Stabenow) are actively working to get more cosigners.

Over the years, your work has been instrumental in securing federal funding for Fragile X research at the National Institutes of Health – most recently $40 million/year.

NIH Fragile X Research


We participate in coalitions that help advance our priorities and are consistent with how we approach our advocacy – trustworthy, consistent, non-partisan, and above the fray. One of the coalitions, the Friends of the National Institute of Child Health and Human Development (NICHD), is hosting a Hill Day on Wednesday, May 3. I will be participating on behalf of you and the rest of the NFXF to help support research at NIH.

Civics in 30 Seconds: Appropriations

Last time, we learned about the federal budget. This week – appropriations, how much is spent where and how. Only about 40% of the federal budget is subject to appropriations by Congress. This is called discretionary spending. Congress authorizes a ceiling to spend on a program, and then, each year, Congress appropriates an amount to that program. It is never as much as is authorized.

The other 60% of the federal budget is mandatory spending – that is, the money is spent based on if someone qualifies under the law, not if Congress appropriates the funds (hence the term “mandatory spending”). Common programs here are Social Security and Medicare.

Next time: Committee mark-up

If you would like to stay up-to-date and are not already on our Advocacy Newsletter list, please sign up for our newsletter. Make sure to check the box for Advocacy and Public Policy.

If you have any questions, need help or have feedback from the offices, please let me know at

Thank you.

Dan Whiting
Director of Communications and Government Relations

Dan WhitingDan Whiting is the Director of Communications and Government Relations. He has nearly 20 years of experience in public policy and communications, serving on both the legislative and communications staff of a US Senator for 11 years, in the Bush Administration as Chief of Staff at the USDA Natural Resources Conservation Service, supporting advocacy at a national trade association, and, for nearly five years, as a senior strategist for communication initiatives across the DOD.