They each have their own unique story, and we’re sharing the individual stories from both the male and female panels here.
A quick note about the wide range of signs and symptoms in Fragile X syndrome: The amount of help an individual with FXS may need in their daily life varies, though males are affected more frequently and generally with greater severity. In fact, significant intellectual disabilities are found in the majority of males vs. about one-third of females with FXS.
A small percentage of females will have no apparent signs of the condition — intellectual, behavioral, or physical — and often are identified only after another family member has been diagnosed.
Now it’s time to meet Allison Cohen, Michael Cohen, Doug Cooper, Aaron Heisel, Samantha Rhodes, Joshua Rocker, Jodi Selinger, Spencer Shelton, and Cassie Stringer.