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Understanding Fragile X
Fragile X 101
Fragile X 101
Prevalence
Signs & Symptoms
Genetics and Inheritance
Testing and Diagnosis
Fragile X Syndrome
Fragile X Syndrome
Fragile X & Autism
Associated Conditions
Premutation
FXPOI
FXTAS
New Developments
Xtraordinary Individuals
31 Shareable Fragile X Facts
Fragile X Info Series
FRAGILE X MASTERCLASS
Knowledge Center
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Resources for Families
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Adulthood
Autism
Behavior
Daily Living
Females
Medications
Physical & Medical Concerns
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School & Education
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Premutation Topics
The Fragile X Premutation
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FXPOI Resources
Reproductive Resources
Newly Diagnosed
Research
Research 101: What is Research?
STX209 Reconsent Project
International Fragile X Premutation Registry
Participate in Research
Original Research Articles
FORWARD-MARCH
Research Results Roundup
Find a Clinic Near You
Find a Contact Near Your
Knowledge Center
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Printable Resources
Treatment Recommendations
Resources for Professionals
Resources for Professionals
NFXF MasterClass™️ for Professionals
Research Readiness Program
NFXF Data Repository
International Fragile X Premutation Registry
FORWARD-MARCH Registry & Database
NFXF-Led Patient-Focused Drug Development Meeting
Marketing Your Research Opportunities
Treatment Recommendations
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Junior Investigator Awards
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Event Submission Form
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Event Submission Form
Event Submission Form
Dany Petraska
2022-10-06T18:45:13-04:00
NFXF Events Submission Form
Event Information
Event Title
*
You can include your actual event title here, ex: "New Directions in Fragile X Treatment" or "Fragile X Morning Coffee"
Date
*
Multiday
Multi-Day Event
Check if event is more than one day.
End Date
Start Time
12
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5
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7
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9
10
11
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00
15
30
45
AM
PM
End Time
12
1
2
3
4
5
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7
8
9
10
11
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15
30
45
AM
PM
Host(s)
Types of Hosts
CSN Group(s)
Fragile X Clinic(s)
Other
CSN Group(s)
Boh Center for Child Development, Ochsner Health System
Boston Childrens Hospital
Central Alabama Fragile X
Central California Fragile X
Central Illinois Fragile X
Children’s Hospital of Orange County
Childrens Health and UT Southwestern Medical School
Childrens Hospital Colorado
Childrens Hospital of Pittsburgh of UPMC
Childrens National Fragile X Clinic
Cincinnati Fragile X Research and Treatment Center
Cleveland Clinic Foundation
Colorado Fragile X
Duke University Medical Center
Elwyn Fragile X Center
Emory University School of Medicine
Families for Fragile X
Fragile X Alliance of Ohio
Fragile X Alliance of Texas - Houston
Fragile X Alliance of Texas - San Antonio
Fragile X Association of Michigan
Fragile X Association of Southern California
Fragile X Association of Utah
Fragile X Center at Atlantic Health System
Fragile X Center at Atlantic Health System
Fragile X Central Pennsylvania
Fragile X Community Support of Wisconsin
Fragile X Families of Northern Virginia
Fragile X Families of Phoenix
Fragile X Families of Southeast Virginia
Fragile X Families of the Appalachians
Fragile X Northern California
Fragile X of Central Arkansas
Fragile X of Minnesota
Fragile X of Northern Arizona
Fragile X Resource Center of Missouri
Fragile X Resource Group of Greater New York City
Fragile X Society of Connecticut
Fragile X Southeast Pennsylvania
Fragile X Spectrum Disorder Clinic at Mount Sinai
Greater Atlanta Fragile X
Greater Chicago Fragile X
Greater Portland Fragile X Community Support
Greenwood Genetic Center Fragile X Clinic
Group Name Clean
Gulf Coast Region Fragile X Support Group
Heartland Fragile X Alliance
Kansas Fragile X Group
Kennedy Krieger Institute
Louisiana Fragile X Association
Mailman Center for Child Development
Maryland Fragile X Resource Group
MemorialCare Miller Children's & Women's Hospital Long Beach
MetroHealth Medical Center
Nebraska Fragile X Families Resource and Support Group
New Jersey Fragile X Community Support Group
New York State Institute for Basic Research in Developmental Disabilities
North Carolina Fragile X Foundation
North Idaho Eastern Washington Fragile X
North San Diego
Northern Vermont Fragile X Community Support
Norton Children's Developmental Center and Norton Children's Genetics Center
NYS Institute for Basic Research in Developmental Disabilities
Phoenix Childrens Hospital
Rush University Medical Center
Rutgers Robert Wood Johnson Medical School, Child Health Institute of New Jersey
Sibling and Self-Advocate Community Support Network
South Carolina Fragile X Resource Group
Stanford University
Texas Childrens Hospital
Texas Fragile X Association
Tri-State Fragile X Alliance
UC Davis Health System
University of Iowa Stead Family Children’s Hospital
University of Kansas Medical Center
University of Massachusetts Medical School University of Massachusetts Memorial Health Care
University of Michigan Hospital
University of Minnesota
Washington University
Western Massachusetts Fragile X
CTLR and click on Windows or Command and click on Mac to select multiple groups.
CSN Region
Northeast
Mid Atlantic
Southeast
Central
Southwest
Northwest
West
Fragile X Clinic(s)
Boh Center for Child Development, Ochsner Health System
Boston Childrens Hospital
Central Alabama Fragile X
Central California Fragile X
Central Illinois Fragile X
Children’s Hospital of Orange County
Childrens Health and UT Southwestern Medical School
Childrens Hospital Colorado
Childrens Hospital of Pittsburgh of UPMC
Childrens National Fragile X Clinic
Cincinnati Fragile X Research and Treatment Center
Cleveland Clinic Foundation
Colorado Fragile X
Duke University Medical Center
Elwyn Fragile X Center
Emory University School of Medicine
Families for Fragile X
Fragile X Alliance of Ohio
Fragile X Alliance of Texas - Houston
Fragile X Alliance of Texas - San Antonio
Fragile X Association of Michigan
Fragile X Association of Southern California
Fragile X Association of Utah
Fragile X Center at Atlantic Health System
Fragile X Center at Atlantic Health System
Fragile X Central Pennsylvania
Fragile X Community Support of Wisconsin
Fragile X Families of Northern Virginia
Fragile X Families of Phoenix
Fragile X Families of Southeast Virginia
Fragile X Families of the Appalachians
Fragile X Northern California
Fragile X of Central Arkansas
Fragile X of Minnesota
Fragile X of Northern Arizona
Fragile X Resource Center of Missouri
Fragile X Resource Group of Greater New York City
Fragile X Society of Connecticut
Fragile X Southeast Pennsylvania
Fragile X Spectrum Disorder Clinic at Mount Sinai
Greater Atlanta Fragile X
Greater Chicago Fragile X
Greater Portland Fragile X Community Support
Greenwood Genetic Center Fragile X Clinic
Group Name Clean
Gulf Coast Region Fragile X Support Group
Heartland Fragile X Alliance
Kansas Fragile X Group
Kennedy Krieger Institute
Louisiana Fragile X Association
Mailman Center for Child Development
Maryland Fragile X Resource Group
MemorialCare Miller Children's & Women's Hospital Long Beach
MetroHealth Medical Center
Nebraska Fragile X Families Resource and Support Group
New Jersey Fragile X Community Support Group
New York State Institute for Basic Research in Developmental Disabilities
North Carolina Fragile X Foundation
North Idaho Eastern Washington Fragile X
North San Diego
Northern Vermont Fragile X Community Support
Norton Children's Developmental Center and Norton Children's Genetics Center
NYS Institute for Basic Research in Developmental Disabilities
Phoenix Childrens Hospital
Rush University Medical Center
Rutgers Robert Wood Johnson Medical School, Child Health Institute of New Jersey
Sibling and Self-Advocate Community Support Network
South Carolina Fragile X Resource Group
Stanford University
Texas Childrens Hospital
Texas Fragile X Association
Tri-State Fragile X Alliance
UC Davis Health System
University of Iowa Stead Family Children’s Hospital
University of Kansas Medical Center
University of Massachusetts Medical School University of Massachusetts Memorial Health Care
University of Michigan Hospital
University of Minnesota
Washington University
Western Massachusetts Fragile X
CTLR and click on Windows or Command and click on Mac to select multiple groups.
Other
Location
Use the address of the actual location of the event. A map will be displayed on the event listing. Additional details about where to park, etc can be listed below in "More Location Details"
Name
ex: University of Connecticut Health Center
Street Adress
ex: 123 Main St
City
*
State
*
AL
AK
AR
AZ
CA
CO
CT
DE
FL
GA
HI
ID
IL
IN
IA
KS
KY
LA
ME
MD
MA
MI
MN
MS
MO
MT
NE
NV
NH
NJ
NM
NY
NC
ND
OH
OK
OR
PA
RI
SC
SD
TN
TX
UT
VT
VA
WA
WV
WI
WY
DC
Zip Code
More Location Details
If you would like, you can enter in additional location details, like where to park or landmarks to look for. Please keep them short though.
Registration Information
Registration Form
Online Form (provide URL)
Upload PDF form(s)
Registration Form URL
Registration Form(s) Upload
Drop a file here or click to upload
Choose File
Maximum file size: 104.86MB
Upload only PDF version of the registration form. You can ctrl and click multiple PDF to upload if needed.
Cost Details
Registration fee: $50 FX Group Members & Families: $40
Registration includes Lunch
>>> Either Update this information or delete it if there are no details <<<
Include any registration information like cost, includes lunch, etc. If there are no details, delete the contents.
Additional Details
Here you can give as much additional information as you'd like to provide. Be sure to include target audience, any information, parking details, featured speakers or guests, etc. Be sure to include any contact information.
Details
Audience
Fragile X families and professionals
Information
This is our first ever social event where we will be...
Featured Speakers/Guests
John Doe
Questions / Contact Information
Name
email@domain.com
123-456-7890
>>> For all upcoming Save the Date Events, please delete the information above (including this line) and fill in your contact information below.<<<
Save the Date, more information is coming soon! Contact ______________________ at _____________@fragilex.org for more information or check back to our page soon for more details.
Provide any additional details here. Be sure to include the desired contact information for users visiting the listing.
Images
Please include at least a
Primary Image
used for promoting your event,
that is not just your group logo or event flyer
. Please have it tied to the event, if possible an image from a previous years event. Feel free to include any
Additional Images
you feel would help promote your event.
Primary Image
Drop a file here or click to upload
Choose File
Maximum file size: 104.86MB
Please provide an image that we can use in promoting this event. Some ideas are a picture from a previous event you've held, a group photo or even an image of the event's location.
Additional Images
Drop a file here or click to upload
Choose File
Maximum file size: 104.86MB
You can CTLR and click on Windows or Command and click on Mac to select multiple files.
Event Promotion
If you do not wish to have your event push on our social media accounts or have an email blast sent out to members of our database, please
uncheck
the options below.
Event Promotion
Social Media push
Email blast
RSVP Date
Please provide us with your events RSVP date, if you have one, so that we can be sure your promotion is completed in time.
Comments
Any comments related to our event promotion of your event. Maybe a particular range you'd like our email blast to cover.
Your Contact Information
Please provide us with your name, email and phone number so that we may contact you if we have any questions about your submission. Note that this information is for administrative purposes only.
Name
*
First
Last
*
Last
Phone Number
*
Email Address
*
If you are human, leave this field blank.
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