Although the sky was sunny and the temperature near 70, Washington, DC was taken by storm this past March 6 and 7. But it was the cause of Fragile X and not rain that appeared on the map.
Nearly 150 advocates represented close to two-thirds of the U.S. with great energy and pride as they delivered our message for continued, level and dedicated funding for FX research and programming at the NIH, CDC and DOD. Advocates were also in search of co-sponsors for the ABLE, Keeping All Students Safe and TEAM Acts.
The deluge continued post Advocacy Day when advocates from all 50 states showered Members of Congress with more than 4,200 letters and emails—more than doubling the previous record! Although the federal budget process begins each year in early spring, the process continues into the year, concluding with the start of the next fiscal year on October 1. Over the past few years, however, that deadline hasn’t been met for various reasons, and this year is expected to follow suit. With a huge election in November, it is unlikely there will be much compromise before the whole political situation shakes out after November 2. So there’s still time for you to weigh in. If you haven’t written to your Members of Congress yet you can still do so with our easy online form.
As always, Advocates found the recent experience of Advocacy Day enlightening, enriching and even life-changing. Members of Congress and their staff gave them rave reviews on both the content they delivered and the dignified way they represented the entire Fragile X community.
There’s still much work to be done, and everyone can join our efforts as this momentous year in Washington, DC wears on. Watch for Action Alerts, join us on Facebook, and start planning now to join us next year when we will once again travel to our nation’s Capitol to make the world a better place for our kids and everyone whose life is touched by Fragile X.
Keep up with us for more opportunities!
- NFXF Advocacy newsletter (Select Special Lists > Public Policy and Legislative Advocacy)
- Fragile X Advocates on Facebook
- NFXF on Facebook