There is strength in numbers, which is why we work with other patient advocacy groups on common goals, such as funding at the National Institutes of Health (NIH), the Centers for Disease Control and Prevention »
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http://www.cdc.gov/ncbddd/spanish/fxs/index.html Los Centros para el Control y la Prevención de Enfermedades (CDC, por sus siglas en inglés) ha traducido en español su página web sobre el Síndrome X Frágil. El sitio es igual »
Good news! The 2012 federal budget process has finally concluded, and Fragile X has emerged from the process with federal funding and programs intact. This was only because of the relationships we’ve nurtured and grown »
Transition to Adult Services for Individuals with Fragile X Syndrome Consensus of the Fragile X Clinical & Research Consortium First Published: April 2020 This paper is focused on the transition from adolescence to »
By Jeffrey Cohen Director of Governmental Affairs and Advocacy, NFXF The 2012 federal budget remains an unsettled matter. The 2011 fiscal year ends on 9/30 and 2012 begins on 10/1. Under “normal” circumstances the 2012 »