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FY18 CDC Funding

By | 2017-07-10T16:20:27+00:00 Jul 10, 2017|Uncategorized|

...The President’s budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the...

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Sitio de CDC de Síndrome de X frágil ahora en español | CDC Fragile X Syndrome Site Now in Spanish

By | 2013-08-30T13:20:29+00:00 Aug 30, 2013|Keeping You Informed|

...http://www.cdc.gov/ncbddd/spanish/fxs/index.html Los Centros para el Control y la Prevención de Enfermedades (CDC, por sus siglas en inglés) ha traducido en español su página web sobre el Síndrome X...

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Advocacy

By | 2018-12-03T07:43:54+00:00 May 29, 2017|

...that support Fragile X families such as research at the NIH and DOD, research and public health programs at the CDC, ABLE accounts for savings, facilitating the use of potential...

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CDC Feature: Public Health Research on FXS

By | 2014-10-20T14:57:37+00:00 Oct 20, 2014|In the News|

...In their article, “Public Health Research on Fragile X Syndrome”, the CDC explains their Fragile X syndrome (FXS) data collection progress, and results from a recent stakeholder meeting...

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Fragile X Syndrome

By | 2018-10-02T12:28:37+00:00 May 22, 2017|

...girls with FXS. According to the CDC, a national parent survey found that 46 percent of males and 16 percent of females with FXS have been diagnosed or treated for...

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Fragile X and Autism

By | 2018-10-17T08:23:52+00:00 Sep 24, 2018|

...CDC, a national parent survey found that 46% of males and 16% of females with FXS have been diagnosed or treated for ASD. The FORWARD Registry & Database tells us...

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