19th NFXF International Fragile X Conference
The NFXF International Fragile X Conference is the premier educational event for the Fragile X community. This biennial event brings individuals with Fragile X and their families, caregivers, friends, and professionals together to learn from one another and celebrate Fragile X. This unique experience is not only educational but also empowering.
Our Recent Conference Was July 25–28, 2024, in Orlando!
The 19th NFXF International Fragile X Conference on July 25–28, 2024, was held at the Renaissance Sea World in Orlando. More post-conference news will be added soon.
Below you’ll find the agenda, sponsors, and can refer to the table here for information on virtual sessions:
| What’s Included for On-Site & Virtual Attendance | On-Site Attendance | Virtual Attendance |
| Keynotes | ✓ | ✓ Live stream*** |
| Industry Updates | ✓ | ✓ Live stream |
| Panel Sessions* | ✓ | ✓ Live stream |
| Self-Advocate Sessions** | ✓ | |
| Breakout Sessions | ✓ | Recording only |
| Kickoff Reception (Thursday) | ✓ | |
| Poster Presentations (Friday) | ✓ | Recording only |
| Saturday Celebration | ✓ | |
| Access to Recordings Post-Conference: Keynotes, Industry Updates, Poster Presentations, and Panel and Breakout Sessions | ✓ | ✓ |
*Due to the sensitive nature of the content, some sessions will not be recorded.
**Self-advocate sessions cover topics, activities, and strategies to educate and empower self-advocates, encourage connections with other self-advocates and their caregivers, and learn meaningful strategies and skills to implement at home, school, work, and community. Sessions may be interactive including movement, hands-on activities, music, and talking. See the agenda for more.
***Live streams and recordings will be available on the Whova app. Instructions will be provided. Recordings will be available within two weeks after the conference. There will not be any opportunity for virtual attendees to interact with presenters for recorded sessions. Self-Advocate sessions will not be live-streamed or recorded.
IMPORTANT DATES
Conference
SAVE THE DATE! 20th NFXF International Fragile X Conference
July 16-19, 2026
Louisville, KY
Thank you to our 40th Anniversary Sponsors!
Anonymous (4)
Melissa and Al Blount
Laurie and Will Bridges
Nancy Christensen
Sari Ciment
Jaquelyn Coleman
Joanne Crotty
Jordan Crotty
Jennifer Epstein
Mark Gershensen
Shannon Farruk
Peggy and Mike Flanigan
Kara Frech
Ilana Garber
Randi Hagerman
Stephanie Jacob and John Harrigan
Marcia and Denny Haugen
Susan Howell
Eileene Hutchinson
Lisa and Michael Kelley
Patricia Kennedy
Reymundo Lozano, MD
Emily Mack
Patricia Martin
Carolyn Menzie
Hilary and Drew Rosselot
Rebecca Shaffer, PsyD
Stephanie Sherman
Shari and Brian Silver
Jennifer and Kimball Silverton
Kristin, Riley and Jake Smith
Anne and Jay Souder
Diane and Scott Southard
David Tillman
Melissa Verardi
Victoria Wilkins, MD
Conference Agenda & Speakers
You may view the agenda below or — especially for mobile users — please VIEW THE AGENDA ↗ on a new page. You can also open or download a PDF.
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Thank You to Our Generous Sponsors
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Conference FAQs
Conference locations are chosen years in advance through a competitive proposal process. Our partner helps us select sites that are best suited for the Fragile X community. We will continue to move the conference around the country to manage overall costs.
The NFXF is a bipartisan organization in all things we do.