Yearly Archives: 2020

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Fragile X and Face Masks (Not What FXFM Stands For)

By |2021-01-05T18:14:26-05:00Oct 14, 2020|Education|

Looks like the wearing of face masks is here to stay for a while, so you may as well try to have some fun with it. I know, I know – they are not that fun. But, I did have a parent send me a link to a mask that has a chew cord as part of the mask. I just love how creative people are.

Life with Fragile X: Who is Helping Who?

By |2020-10-07T11:14:06-04:00Oct 7, 2020|Advocacy|

We’re always looking for new ways to share and raise awareness about Fragile X, life with Fragile X, and the individuals and families it affects. Here we talk with Laura Dooling and her life with three cousins with Fragile X syndrome.

From One Caretaker to Another

By |2020-09-02T15:13:11-04:00Aug 6, 2020|Blog|

Being the caretaker of someone with special needs, such as Fragile X syndrome, can be daunting. Isabel looks back at her journey, sharing advice and encouragement for new caregivers or those who have been doing it for years.

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