Yearly Archives: 2019


Helping Fragile X Families in Colombia

By |2019-03-12T13:01:40-04:00Mar 12, 2019|Research|

With a number of colleagues from the UC Davis MIND Institute in California, including Dr. Randi Hagerman, and colleagues from the Asociación X Frágil Colombia, I just completed a 10-day trip throughout Colombia including Cali, Medellin, Bogota, Buqa and Ricaurte (the small, isolated rural town with ten times the typical prevalence of Fragile X). Our work involved numerous talks at medical centers and well-over 75 meetings with individual families.

Research Study on Language and Brain Imaging

By |2020-03-05T14:47:16-05:00Mar 11, 2019|Opportunities for Families|

The Waisman Center at the University of Wisconsin-Madison is recruiting boys with fragile X syndrome and autism spectrum disorder for a study on language and communication skills and Magnetic Resonance Imaging (MRI). The purpose of this research is to better understand how children with fragile X and children with ASD use language. All of the testing is done at the Waisman Center, and can be scheduled at your convenience. 

Open Post-Doctoral Position in FMR1-related and ASD Research

By |2019-04-09T15:25:09-04:00Mar 4, 2019|Research|

The Waisman Center at the University of Wisconsin-Madison has an open position in the Post-Doctoral Training Program in Intellectual and Developmental Disabilities Research. This program has been supported continuously by NICHD since its inception in 1995, and over 95% of former trainees have obtained faculty and/or research positions relevant to IDD. The majority have successfully received extramural research funding.

NFXF Advocacy Day – Another Success

By |2019-02-28T13:51:49-05:00Feb 28, 2019|Advocacy|

Advocacy Day 2019 is done, and by all measures, it was another success. Fragile X advocates visited 56 Senate offices and 61 House offices – all of their home districts. We had fun, connected with ...

Surviving Changes in Washington

By |2019-01-03T17:53:44-05:00Jan 3, 2019|Advocacy|

As I watched the new U.S. House of Representatives be sworn in today and elect Rep. Nancy Pelosi as its new Speaker, I was reminded, again, that we are fortunate to live in a country where we can change control in Washington in the voting booth, not with tanks in the street. And when change happens, it is peaceful outside the Capital and collegial inside.

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