Yearly Archives: 2018

Home/2018

Another Advocacy Day in the Books

By |2018-03-08T15:37:18-05:00Mar 8, 2018|Advocacy, Advocacy Day|

This Tuesday, more than 150 National Fragile X Foundation volunteers representing 27 states traveled to Washington, DC for NFXF Advocacy Day. In 130 meetings, our parents, grandparents, siblings, aunts, uncles, cousins, friends, professionals, and - ...

Fragile X Research at the DOD

By |2018-03-01T10:55:45-05:00Mar 1, 2018|Advocacy, Research|

Thanks to the hard work of NFXF Advocates years ago, Fragile X is one of the authorized research areas at the Department of Defense's Congressionally Directed Medical Research Program (DOD CDMRP). Millions of dollars in ...

A Blood Test for Autism? Not So Fast

By |2019-04-01T16:11:24-04:00Feb 20, 2018|Genetics|

Among families and professionals, in schools and therapeutic settings, there is already a great deal of confusion about the relationship between genetic test results and developmental diagnoses. We challenge the the notion that autism itself can be directly diagnosed through a blood test.

Congress Passes the RAISE Act

By |2018-01-10T17:43:11-05:00Jan 10, 2018|Advocacy, Advocacy Day|

Last night, Congress passed the RAISE Family Caregivers Act. The bill, introduced by Fragile X Caucus co-chair and parent, Rep. Gregg Harper, directs the Secretary of HHS to work with stakeholders from state and local ...

Fishing for a Cure

By |2021-02-03T17:31:23-05:00Jan 9, 2018|AnythingForFragileX|

Joey Christoff’s son, Mitchell, has Fragile X syndrome, and his wife and mother-in-law are carriers at risk of Fragile X-associated disorders. Caring for them and giving hope to other families is what drives Joey ...

Participate in Market Research Opportunity

By |2018-01-10T15:56:28-05:00Jan 8, 2018|Research|

The NFXF is looking for 10 parents of children with a diagnosis of Fragile X syndrome, including both males and females, from all over the country, to participate in a market research opportunity related to ...

Northern California, help us serve you!

By |2018-01-05T15:09:39-05:00Jan 5, 2018|Northern California|

Recently, the Northern California Fragile X support group became the NFXF Northern California Chapter. Becoming a formal chapter of the National Fragile X Foundation provides us with many benefits that will help us better connect ...

Load More Posts