Fragile X Research at the DOD

By |2018-03-01T10:55:45-05:00Mar 1, 2018|Advocacy, Research|

Thanks to the hard work of NFXF Advocates years ago, Fragile X is one of the authorized research areas at the Department of Defense's Congressionally Directed Medical Research Program (DOD CDMRP). Millions of dollars in [...]

A Blood Test for Autism? Not So Fast

By |2023-02-22T11:07:26-05:00Feb 20, 2018|Autism, Genetics and Inheritance|

Among families and professionals, in schools and therapeutic settings, there is already a great deal of confusion about the relationship between genetic test results and developmental diagnoses. We challenge the the notion that autism itself can be directly diagnosed through a blood test.

Congress Passes the RAISE Act

By |2018-01-10T17:43:11-05:00Jan 10, 2018|Advocacy, Advocacy Day|

Last night, Congress passed the RAISE Family Caregivers Act. The bill, introduced by Fragile X Caucus co-chair and parent, Rep. Gregg Harper, directs the Secretary of HHS to work with stakeholders from state and local [...]

Fishing for a Cure

By |2023-03-16T15:15:15-04:00Jan 9, 2018|AnythingForFragileX, Fundraising|

Joey Christoff’s son, Mitchell, has Fragile X syndrome, and his wife and mother-in-law are carriers at risk of Fragile X-associated disorders. Caring for them and giving hope to other families is what drives Joey [...]

Participate in Market Research Opportunity

By |2018-01-10T15:56:28-05:00Jan 8, 2018|Research|

The NFXF is looking for 10 parents of children with a diagnosis of Fragile X syndrome, including both males and females, from all over the country, to participate in a market research opportunity related to [...]

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