by Dan Whiting
Posted on April 3, 2018
Registration for the 16th NFXF International Fragile X Conference is now live, register now to take advantage of the early-bird discount!
The Conference is coming to Cincinnati, Ohio, this July 11-15, and we want you to be a part of it! This biennial conference presents a unique opportunity where 800 – 1000 parents and professionals from around the world gather to learn the latest about Fragile X.
The conference is geared toward all members of the Fragile X community: family members, caretakers, professionals, and researchers. There are even special sessions for individuals living with Fragile X syndrome.
The majority of the conference sessions are “Family-Friendly” and cover all Fragile X disorders, including FXS, FXTAS, and FXPOI, with the greatest number of sessions focusing on FXS through the lifespan. There are many scientific and technical sessions available too.
We will also have experts on hand to discuss the latest research from gene reactivation to clinical trials to information on adults with FXS and premutation carrier issues.
The conference is unique in that it is an opportunity for medical professionals and researchers to have discussions with the parents of children with Fragile X, and we have learned that this experience has motivated the specialists to continue their work in making a difference in the lives of people with FXS.
Benefits from attending include:
- Discover the latest research by some of the world’s leading Fragile X experts.
- Learn new techniques, behavioral interventions, and coping strategies.
- Connect with researchers, clinicians, educators, psychologists, and parents.
- Start new lifelong friendships and reconnect with old friends.
We hope you can join us.
A special note of thanks. Attendance for many families is only possible due to generous scholarships provided by the NFXF’s Community Support Network and their members and donors. Thank you to these groups who provided over $34,000 in scholarships, allowing 72 individuals to attend:
Fragile X Alliance of Texas
Greater Chicago Fragile X
Greater Atlanta Chapter
Fragile X Association of Michigan
Southeast Pennsylvania Chapter
Central Illinois Chapter
Greater New York City Chapter
Western Massachusetts Chapter
Fragile X Association of Southern California
Utah Fragile X Association
Northern California Chapter
Fragile X Central Pennsylvania
Fragile X Resource Center of Missouri
Washington State Chapter
Colorado Fragile X
All of this isn’t possible without the entire NFXF Community Support Network, which is the foundation of the National Fragile X Foundation. In addition to the CSN Scholarships, the Shannon’s Wonder Woman Scholarship and the Arthur S. Mintz Memorial Scholarship have also provided scholarships, assisting additional individuals to attend the Conference.