Vanderbilt: Fragile X/Angelman Syndrome Study

by David Salomon

girl blowing dandelion
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Vanderbilt University Medical Center. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.

Do you have an adolescent child diagnosed with Fragile X syndrome or Angelman syndrome?

We Need:

Either two females, or one male and one female, ages 16 – 17 years old for a study of an investigational medication for Fragile X and Angelman syndromes.

Evaluations, study visits, and study drug are provided at no cost. Compensation for your time will be provided. Travel may be reimbursed, depending on need.

You will be asked to come for 2 visits to Vanderbilt University in Nashville, TN over 2 weeks to take part in this research study. A blood draw is required. Participant must be able to swallow a capsule.

If you are interested, please contact
Sarah Marler
615-936-3288
sarah.marler@vanderbilt.edu