Vanderbilt: Fragile X/Angelman Syndrome Study

By |2017-08-17T15:41:38-04:00Jul 26, 2017|Opportunities for Families|

Vanderbilt University Medical Center [mpc_image image="28431" padding_divider="true" padding_css="padding-bottom:20px;" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Do you have an adolescent child diagnosed with Fragile X syndrome or Angelman syndrome? We Need: Either two females, or [...]

The Many Ways You Raise Fragile X Awareness—Every Day!

By |2017-07-11T11:40:58-04:00Jul 11, 2017|Awareness Day|

[mpc_image preset="preset_2" image="28333" padding_divider="true" padding_css="padding-bottom:15px;" image_size="700_thumb" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Every day when you walk out the door with your child who has Fragile X syndrome (FXS), you are raising awareness of the condition. [...]

FY18 CDC Funding

By |2017-07-10T16:20:27-04:00Jul 10, 2017|Uncategorized|

The President's budget cuts CDC funding for Fragile X research and awareness. Rep. Tom Cole (R-OK-4) and Sen. Roy Blunt (MO) oversee this funding and are working on the bill now! Contact their offices to [...]