Health Insurance, Medicaid, and SSI/SSDI These are three issues that aren’t going away. They are especially critical for Fragile X families and other families with disabilities, lifelong care needs, etc. To help your members [...]
Each year, the National Fragile X Foundation funds one or more summer student research fellowships at $2,500 each through the Summer Student Fellowship Research Fund [Note: now the Randi J. Hagerman Summer Scholar Research [...]
Above: Mouse brains with Fragile X Syndrome (lower) lose the ability to regulate proteins like Brd4 (green). Photo from The Rockefeller University. A new publication in the journal Cell describes efforts by two groups at Rockefeller [...]
[mpc_textblock content_width="100"]We started November giving thanks for a couple who have spent a lifetime helping the Fragile X community. Margaret and Marty Israel have been volunteering for the Fragile X community for 37 years. On [...]
The National Fragile X Foundation is conducting a short five-minute survey to find the aspects of Fragile X syndrome (FXS) that have the greatest impact on the lives of people with FXS and their families/caretakers. [...]
The First Annual Fragile X Pumpkin Carving Contest is here! The mission is to raise awareness of Fragile X by carving the NFXF X into a pumpkin and displaying it. The details: Carve a pumpkin [...]
Getting a diagnosis is hard. It’s really hard. There has been nothing else like it in my life and I cannot imagine there ever will be. It made me sad … really sad.
EveryLife Foundation is holding the Rare Artist Art Contest and we encourage you to enter! All members of the rare disease community throughout the world – including patients, caregivers, family, researchers and medical professionals – are [...]
Both Target and Tommy Hilfiger are announcing new adaptive clothing to accommodate the needs of people with disabilities. Target releases their adaptive clothing for children under their Cat & Jack brand. These clothes include removable [...]
Pictured Above: Fragile X professionals from around the world taking a mud bath, and making the sign of the X, prior to a swim in the Dead Sea, the lowest point on earth at 1,388 [...]
Individuals with a dual diagnosis of Fragile X syndrome and autism have reported greater cognitive and behavioral impairment. With Dr. Walter E. Kaufmann.
It had been a while since Fragile X Southeast Pennsylvania held an educational conference and this one did not disappoint! Approximately fifty people gathered to hear Medical, Educational and Behavioral Interventions for Fragile X. We [...]
The National Fragile X Foundation is pleased to announce that we will be honoring Margaret and Martin Israel as the recipients of the 2017 Lifetime Achievement Award. An award presentation and celebration will be held in [...]
The Fragile X Resource Center of Missouri hosted its 12th Annual Fragile X Mouse Races on Saturday, September 23rd. Nearly 150 guests enjoyed a fast-paced evening of Mouse Races, Mouse Roulette, and bidding on raffle [...]
The Board of the NFXF is very pleased to announce that it has named Linda Sorensen, our current Chief Operating Officer, as Acting Executive Director, effective immediately. Linda, who has been with the [...]
