Visual supports help translate the environment and expectations to an individual with FXS without requiring direct processing of language. This type of information can be processed quickly. Visual supports remain present, so they can be referred to more than one time, whereas verbal directions might be heard and then forgotten. Learning to use visual supports can help alleviate anxiety for the person with FXS and frustration for the person providing support.
Toilet training continues to be an important issue for families who have children with Fragile X syndrome. Several articles on the topic have appeared in previous publications. They mostly focused on introducing toilet training activities to younger children. It has been assumed that children of all ages would benefit from the same strategies, and if they were not initially successful with them, they may never make progress in toilet training. Experience has shown these assumptions to be inaccurate. There is hope for older children (from about age eight and up), but they require a different approach to toilet training. This article addresses strategies found to be most successful in this population.
The National Fragile X Foundation is very fortunate to have so many dedicated professionals and families who work to promote research and provide support for families and individuals living with Fragile X. At each conference, we take the opportunity to publicly acknowledge these tireless individuals who make our work possible.
I’m often hear, “Is he just defiant, or is there something else going on? He refuses to comply, and he seems to want to manipulate me.” Children with and without Fragile X syndrome learn to maneuver in their environments in order to survive and thrive. In order to discern whether a behavior is oppositional, or merely a reaction to anxiety, pay attention to your reaction.
Twelve people, consisting of Greater New York City Community Support Network members and friends, met at the southern entrance of the Highline in Soho to complete a 1.3 mile walk to raise awareness and money for Fragile X.
If your child is between six and 17 years of age, Georgia State University is interested in studying their walking pattern and bone mineral density.