FXTAS Caregivers: There is Help!

By |2024-01-21T17:19:40-05:00May 11, 2016|FXTAS|

Family caregivers play a critical role in managing the needs of individuals with FXTAS throughout the course of the illness. People with FXTAS rely on caregivers for a wide range of support—preparation of meals, household chores, transportation, medications, bathing, dressing, feeding, physical, emotional and social care, and managing family money.

Purdue University Phenotype Survey

By |2016-05-06T10:07:44-04:00May 6, 2016|Opportunities for Families, Research|

Little is known about the early psychosocial and family development of young children with neurodevelopmental disorders. The goal of this study is to partner with families affected by these conditions to better understand children’s individualized strengths and needs.