The Many Functions of Perseveration

By |2019-07-09T17:24:36-04:00Apr 28, 2016|FXS|

Anyone who lives with a person with Fragile X is very familiar with this continuation of a repeated word or phrase. This repetition can be maddening when you are the recipient. At face value, perseveration has no redeeming features and simply serves as an irritant, but in the life of one with Fragile X syndrome (FXS), it can be a valuable asset. Perseverative verbiage often accompanies arousal and acts as a buffer to reduce the anxiety. The repetition can be comforting like a mantra or song.

The Magic Continues: Helpful Tool for Children with Fragile X to be Turned into App

By |2016-04-19T16:33:05-04:00Apr 19, 2016|FXS, Technology|

In 2014, Sarah Moelis and her brother, Ben, exhibited "The Magic Arrows," a game that Sarah, Ben, Hailey Silver and J.D. Gebbia invented. The game helps children with Fragile X syndrome organize their daily activities, easing the anxiety often triggered by transitioning from one activity to another. Sarah is on-course to unveil the commercial release of "The Magic Arrows" app before the start of conference. Sarah is looking for volunteer families who are part of the Fragile X community to be part of a limited test group this June. Volunteers will use the 1.0 version of the app and provide feedback.

The Colombia Project of Hope

By |2022-08-17T16:21:40-04:00Apr 15, 2016|Research|

The NFXF and UC Davis MIND Institute investigate the high number of people in Ricaurte, Colombia, with intellectual disabilities. An amazing story.

My Last Marathon is my First of Something Else…

By |2016-04-06T16:22:52-04:00Apr 6, 2016|Annoucements|

[mpc_image preset="preset_2" image="22344" image_size="700_thumb" image_opacity="100" effect="none" image_hover_opacity="100" overlay_background="rgba(255,255,255,0.35)" overlay_enable_lightbox="true" mpc_ribbon__disable="true" animation_in_type="transition.expandIn" animation_in_offset="100" animation_in_duration="900" animation_in_delay="300"] In March of 2015, as I crossed the finish line of my last marathon, I said to anyone who could [...]