Yearly Archives: 2016


Summer Student Fellowship: 2016 Summaries

By |2016-12-21T09:00:46-05:00Dec 21, 2016|Summer Student Fellowship Reports|

The NFXF Summer Student Fellowship was established to encourage a new generation of Fragile X researchers. By funding young scientists’ research pursuits, we believe that it will continue to push Fragile X into exciting new territory and inspire them to continue important work in this field.

21st Century Cures Act Demonstrates Bi-Partisan Spirit

By |2016-12-09T09:24:01-05:00Dec 9, 2016|Annoucements, Foundation|

Closely following its passage (392-26 on Nov. 30) in the House of Representatives, the U.S. Senate took up the 21st Century Cures Act and enacted the law by an equally impressive margin (94-5) vote. The law’s next stop is President Obama’s desk, and the President has already made clear his support for the bill and his intent to sign it. Passage will mean nearly $5 billion of new funding for the National Institutes of Health (NIH) and $500 million for the Food and Drug Administration (FDA), along with a plethora of policy provisions that will bolster medical research.

Double Your Giving. Increase Your Impact.

By |2016-12-07T12:43:37-05:00Dec 7, 2016|Annual Fund|

Our annual year-end appeal is underway, and we’re grateful for the generous support during our most important campaign of the year! Your year-end giving helps our planning process for 2017 activities and beyond. With ...

Our Vision for the Future

By |2016-11-18T16:32:33-05:00Nov 18, 2016|Foundation|

WE HAVE A VISION We know that we can’t achieve our vision for the future without you. Let’s start with this question ...

Annual Appeal

By |2016-11-16T10:51:52-05:00Nov 16, 2016|Annual Fund|

“IT’S BETTER TO KNOW THAN NOT KNOW,” BECAME OUR MOTTO WE LIVE BY. Greetings, When our son Justin was diagnosed with Fragile X syndrome at age 5, we knew we would ...

Video Modeling

By |2021-09-10T12:20:07-04:00Nov 9, 2016|Coffee Talk with Mouse and Tracy, Treatment and Intervention|

Therapy is a fun, creative process – one of the reasons that we have been at this for so long! One of the challenges of being a therapist is staying on-top of the ever-emerging intervention techniques that come into practice. Not only is it important to know the best strategies available, but it is important to carefully analyze each technique for its utility and efficacy. As most strategies are typically devised or targeted at a population other than those with Fragile X syndrome (FXS), we have taken it upon ourselves to always analyze the strategies in light the FXS learning style. Most often we find it necessary to modify even the most researched interventions to work for individuals with FXS.

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