NATIONAL FRAGILE X FOUNDATION
2016 ANNUAL IMPACT REPORT

Accomplishing the mission to help all families living with Fragile X, today and tomorrow always begins with you. Through your donations and volunteer work, the NFXF was, once again, able to accomplish our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

We want you to know that every single one of our successes, both locally and nationally, happen because of your support. It is your donations, your volunteer work, and your continued participation in the Fragile X community that keeps the National Fragile X Foundation going strong. We could not do what we do without you – Together, We’re Stronger!

This report highlights our impact in our three mission areas and our audited financial statement for 2016.

COMMUNITY

To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support

45

Support and Business Meetings

86

Social Events

10

Learning
Series Events

800+

International Fragile X Conference attendees

64

Fundraising Events

AWARENESS

To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

53

Awareness and Advocacy Events

Advocacy Day

152 attendees 28 states represented 131 meetings attended $46 million: amount in dollars toward Fragile X research and programming at the NIH and CDC (Source: https://report.nih.gov/categorical _spending.aspx and CDC budget)

Awareness Month Online Presence

9928 Page Likes 143,100 Reached 13,569 Reactions and clicks 1+ million impressions of NFXF content

Website

Nearly 1 million page views 353K unique visitors

RESEARCH

To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure

22 Grants

awarded to FX clinics to support their
services and research coordination

$10,000

provided for Summer
Student Fellowship Grants

BY THE NUMBERS

*Visit fragilex.org/foundation for our 2016 IRS Form 990 and audited financial statement.

National Fragile X Foundation | (800) 688-8765 | fragilex.org