NATIONAL FRAGILE X FOUNDATION
2016 ANNUAL IMPACT REPORT
Accomplishing the mission to help all families living with Fragile X, today and tomorrow always begins with you. Through your donations and volunteer work, the NFXF was, once again, able to accomplish our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.
We want you to know that every single one of our successes, both locally and nationally, happen because of your support. It is your donations, your volunteer work, and your continued participation in the Fragile X community that keeps the National Fragile X Foundation going strong. We could not do what we do without you – Together, We’re Stronger!
This report highlights our impact in our three mission areas and our audited financial statement for 2016.
To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support
Support and Business Meetings
International Fragile X Conference attendees
To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.
Awareness and Advocacy Events
152 attendees 28 states represented 131 meetings attended $46 million: amount in dollars toward Fragile X research and programming at the NIH and CDC (Source: https://report.nih.gov/categorical _spending.aspx and CDC budget)
Awareness Month Online Presence
9928 Page Likes 143,100 Reached 13,569 Reactions and clicks 1+ million impressions of NFXF content
Nearly 1 million page views 353K unique visitors
To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure
awarded to FX clinics to support their
services and research coordination
provided for Summer
Student Fellowship Grants