Finding Hope After Our Diagnosis

By |2022-08-04T15:04:12-04:00Jun 30, 2014|Faces of Fragile X|

Our only child, Kenny, was diagnosed with Fragile X syndrome (FXS) at the age of four. When this happened our family was not only at a loss for words, but at a loss for what we could do for our son and for his future.

Spread the Word to End the Word

By |2014-06-23T14:25:56-04:00Jun 23, 2014|Hope & Inspiration|

In Girl Scouts, there are three different awards you can receive, Bronze, Silver, and Gold. As a member of Girl Scouting, I have received all three awards. The one I feel most proud of is my Gold Award because what I did to earn that award made a real difference to my brother and to my community. I received that award because I organized a “Spread the Word to End the Word” day at my high school, Hopkins Academy.

Let 'Em Know 5k FAQs

By |2014-06-04T12:17:45-04:00Jun 4, 2014|Awareness Day|

Registration & Rules What is the Difference Between Registering, Joining a Team and Donating? Registering When you register for the NFXF Let ‘Em Know 5k, you: Receive a dry-fit shirt and a race bib. Agree [...]