Day: April 17, 2013

Unifying the Chicago LINKS Groups

We’re excited to announce that the Fragile X Families of SW Chicago LINKS Group and Fragile X Resource Group of Greater Chicago are merging to form the Fragile X LINKS Group of Greater Chicago! Be sure to bookmark our site, chicago.fragilex.org.



Memories of Joan Canel

Linda Sorensen, MS Associate Director I received an interesting phone call back in the fall of 2008. It was from Joan Canel, and she wanted to know why there wasn’t more going on in Arizona to raise awareness and money for Fragile X. Not only did she want to know why, she was adamant that



Let the Senate Know We Need Fragile X Funding!

The “letter to appropriators” urging support for Fragile X funding has now been presented in the Senate by our FX champions, Senators Stabenow and Isakson. So far, none of their colleagues have signed on, but this is where YOU can help! Please write to both of your U.S. Senators today and ask them to join