UC Davis MIND Institute Fragile X Spectrum as a Model to Explore Neurogenetic Mechanisms of Cognitive Dysfunction Funded by the National Institutes of Health Approved by the University of California, Davis Institutional Review Board [...]
We’ve all heard about the Affordable Care Act. (Often referred to as “Obamacare.”) What will it mean for individuals with Fragile X syndrome or their families? What about those with FXTAS or FXPOI? Will it [...]
Kosair Charities Pediatric Clinical Research Unit at the University of Louisville Do you have Fragile X syndrome? Are you the parent or caregiver of a person with Fragile X syndrome, or know someone who [...]
We hope your new year is off to a great start! This month we will take a moment to recognize the many individuals, families, students and LINKS groups who took it upon themselves to raise [...]
2012 was the most active year ever in the LINKS Support Network program, with everything from monthly Saturday gatherings for coffee to statewide awareness walks dotting the calendar. In addition to actively participating at the International Conference, many LINKS groups held local educational conferences for families and professionals in their communities. We also saw a lot of growth in the LINKS network, with eight new groups forming and two groups changing leadership. All this activity helped us reach out to more families across the U.S. than ever before.
