Communicating Through Behavior
Source: , Summer 2003 Marcia Braden, PhD As I was pondering what to write about it occurred to me just how adept people with Fragile X syndrome are at telling us what they need [...]
What Did We Learn In Miami?
Robert Miller Executive Director National Fragile X Foundation In the months to come, the NFXF will continue to roll out the latest information from the 13th International Fragile X Conference. This was not [...]
'Fragile X Syndrome' Researchers Boost Social Skills in Mice
New treatment method helped brain process chemicals similar to marijuana in animal study TUESDAY, Sept. 25 (HealthDay News) -- Scientists in search of greater understanding of Fragile X syndrome, a genetic condition tied to [...]
Exciting Media Attention About Fragile X Clinical Trials
The NFXF is pleased to see the media attention surrounding the latest news resulting from clinical trials for Fragile X syndrome treatments. Two members of the NFXF’s Scientific and Clinical Advisory Committee, Dr. Randi Hagerman, the NFXF’s co-founder, and Dr. Elizabeth Berry-Kravis, also a member of the NFXF’s Board of Directors, have been receiving prominent mention. The NFXF has been pleased to be able to assist its corporate partner, Seaside Therapeutics, with recruitment for this trial and others.
Dr. Peter Todd: Molecule Holds "Significant Promise" but "Still has a long ways to go"
Dr. Peter Todd, assistant professor in Neurology and co-director of the FX clinic at the University of Michigan thinks the study findings hold significant promise. “This is an interesting finding of a compound that has [...]
Positive Exposures of Fragile X
Professional photographer Rick Guidotti, of Positive Exposures, shared his beautiful photos of the attendees at the Conference. All rights belong to the National Fragile X Foundation. Feel free to download for personal use. Please contact [...]
Congratulations to the NFXF Awards Recipients
Congratulations to the 2012 National Fragile X Foundation Awards Recipients! LINKS Leader Award for significant contributions to the awareness of Fragile X (Until 2012 called the Education & Awareness Award) Diane Southard Diane Southard [...]
Study on Transition from Adolescence to Adulthood
The University of South Carolina recruiting participants for an online study to help identify policies and services needing to be more responsive to your needs and experiences. They are studying the health and participation in various life activities (school, work, family and community life).