June 2012 We’re less than a month away from setting sail for Miami so we hope you’ve already registered! If not, late online registration is still open until July 11, 2012. Afterwards, you must register [...]
Mouse and Tracy present day-to-day strategies they've drawn from their evidenced-based practice and knowledge of the neurocognitive development of children with Fragile X syndrome.
Robert Miller Executive Director National Fragile X Foundation Some of you may have recently read an online commentary by nationally syndicated, Foxnews.com columnist Dr. Manny Alvarez. Not only does “Dr. Manny,” as he [...]
As we look to celebrate National Fragile X Awareness Day on July 22, we are moved by the people whose stories of hope you will glimpse below. They inspire us at the National Fragile X [...]
Jeffrey Cohen Director of Government Affairs & Advocacy During the week of June 25th I was scheduled to be in DC to attend Congressional Hearings on Seclusion and Restraint and to meet with [...]
If you're not coming to Miami, the next best thing will be to check in regularly with us, starting with www.fragilex.org, where we'll have regular updates on National Fragile X Awareness Day and conference activities, [...]
We pushed out a lot of changes to the last night. We have moved a few sessions around and restored the room information after significant changes to that. We have a few more [...]
http://vimeo.com/42276975 Because everyone deserves an adventure in their life. At the 13th International Fragile X Conference, the National Fragile X Foundation will be proud to present a very special screening of "Mission to Lars", a [...]
Roche and Seaside Therapeutics announced today that they have entered into a collaboration to develop disease modifying treatments for Fragile X syndrome (FXS) and autism spectrum disorders (ASD), both neurodevelopmental disorders
