What's Happening at the Conference?
Make sure your sails are set for due course to Miami this summer! Ahoy! Check out the eXciting speakers and presentations line up. Anchor your hotel reservations today. Buoy your bank account (save $$) by [...]
Make sure your sails are set for due course to Miami this summer! Ahoy! Check out the eXciting speakers and presentations line up. Anchor your hotel reservations today. Buoy your bank account (save $$) by [...]
Your answers will help give a better understanding of how Fragile X syndrome affects families and children What job opportunities are available to young adults with Fragile X syndrome? When do parents tell a daughter [...]
The preliminary agenda for the 13th International Fragile X Conference is now available for viewing. This agenda contains the presentation titles, speakers and times scheduled at the conference. Note: Topics, times [...]
The National Fragile X Foundation is co-hosting National Achieving a Better Life Experience (ABLE) Act Call-In Day on Wednesday, April 25, along with Autism Speaks, National Down Syndrome Society, Muscular Dystrophy Association, NDSC, and several [...]
Mother’s Day is fast approaching and this year we’re focusing on a Mother’s Touch. We'd like people to share an image they may have of someone affected by a Fragile X-associated disorder and their mom. [...]
Logan Edwards Fragile X — a rare chromosomal mutation — is difficult to recognize, but those advocating for its treatment say they hope the University of Iowa Hospitals and Clinics will bring better local [...]
New Haven Conn., April 18, 2012 /PRNewswire/ -- JS Genetics announces the launch of XCAT-FX, its propitiatory buccal swab test for the detection of Fragile X syndrome. Fragile X syndrome is the most common cause [...]
Robert Miller Executive Director National Fragile X Foundation Readers should know that the researchers involved with this study, and their affiliated institutions and companies, are highly regarded and well-known in the Fragile X [...]
As part of our continuing public policy activities, we have been monitoring the incremental implementation of the Affordable Care Act (ACA). Many of you know that the Act is currently under review by the Supreme [...]
Robert Miller National Fragile X Foundation Member of the FXCRC Steering Committee On this World Autism Awareness Day it is important to remember that one of the significant causes of autism is already [...]