Join us as we speak with Vicki Sudhalter, PhD, about Individualized Education Plans (IEP). Hosted by Robert Miller with Jayne Dixon Weber. The Individualized Education Plan (IEP) is a very influential document in the academic [...]
By Jeffrey Cohen Director of Governmental Affairs and Advocacy, NFXF The 2012 federal budget remains an unsettled matter. The 2011 fiscal year ends on 9/30 and 2012 begins on 10/1. Under “normal” circumstances the 2012 [...]
Here are highlights of upcoming Fragile X Events in the month of October and the beginning of November. Check out our Events Calendar to see what else is going on. Click on each event link [...]
Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first [...]
Robert Miller, Executive Director of the NFXF I don't need to tell you that Fragile X syndrome can have a big impact on families! But exactly what is that impact and what can [...]
Advocacy Day is an annual event sponsored and organized by the National Fragile X Foundation. Advocacy Day 2012 takes place Tuesday March 6 - Wednesday March 7, 2012, which is when Congress is [...]
We've previously announced Our Fragile X World through our social media accounts, our Fragile Xtras e-newsletter and the NFXF Quarterly. Our Fragile X World is a community of families and researchers dedicated to using survey [...]
National Fragile X Foundation Board Member Deborah Kwan is hosting the 2nd Annual Hat Party to benefit the NFXF. Come wearing your favorite hat for a night of drinks, appetizers, and dancing! The Northern California [...]
From the New York State OPWDD press release (STATEN ISLAND) The New York State Office for People With Developmental Disabilities' (OPWDD) Institute for Basic Research in Developmental Disabilities (IBR) has been selected to receive a [...]
