My Extra Special Day
I have had the joy of watching you grow into an amazing young woman. Thank you for being my extra special daughter and sister to your brother. We are proud of you and all that [...]
I have had the joy of watching you grow into an amazing young woman. Thank you for being my extra special daughter and sister to your brother. We are proud of you and all that [...]
Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness. Guests [...]
When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled. Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]
In 1998 and 2001 we had our two daughters. Jessica and Victoria. Jessica showed signs of developmental delays and speech problems, but I was always told she'll be fine. Victoria was right on track developmentally, [...]
No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]
No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]
Our son, Jackson, is the light of our lives. When we received his diagnosis, we had never heard of Fragile X Syndrome. We have been so fortunate to be connected with other amazing families like [...]
My name is Genia and I am the blessed sister of GeMon aka Money. This young man is one of the most sincere and loving spiritual beings you will ever meet in your life. Through [...]
Evan has always had that something special and unique about him, you could see it in his eyes and his smile long before we ever heard the term Fragile X syndrome. I am so proud [...]
My grandson - Hayden inspires me each and every day. When I feel like I can't do another thing I think of him and how each day for him is a struggle. He greets every [...]
My name is Lara Bailey and I have Fragile X. My carrier status is that I am a mosaic. I have both the full mutation and the pre-mutation. It was passed down from my mother's [...]
I really don't know the story that well, my mom could probably share it better, but i wanted to tell it. My mom is the eldest of 4 brothers also the only one that doesn't [...]
Elise is 8 years old and full of life!! She is happy, bright and kind. Elise continues to thrive on her own and with educational/social intervention as needed. She takes her role as sister, cousin, [...]