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The School-Age Period: Speech, Language, and Occupational Therapy

The physician can ensure that appropriate special education is provided for the school-aged child, including speech and language therapy and OT. As described in chapters 10 and 11, such support continues to be essential for sensory integration and motor and language development. If this therapy is not provided through the school, the family may need guidance in finding private therapy. Inclusion or mainstreaming into the regular classroom is recommended whenever possible so that the child will have models of normal behavior in the classroom and will learn appropriate social skills. The regular classroom assignments can be modified by an educational aide or special education teacher, so that the child with FXS can complete an appropriate amount of work without excessive frustration (Spiridigliozzi et al. 1994; chap. 11). Although inclusion is beneficial for the child with FXS, it should take place in addition to individual therapy in language and motor areas and support from the special education teacher. Often an aide is needed in a regular classroom for the child with FXS to modify work and support good behavior. Creativity, flexibility, and innovation are the key features for creating an educational environment that enhances the learning strengths and remediates the disabilities of the child with FXS (Schopmeyer and Lowe 1992; Braden 2000a, 2000b; chap. 11).

The School-Age Period: Continued

This article is not intended to give medical advice for individual cases. Any change in medical treatment should be done in consultation with appropriate medical personnel. This article is written for medical professionals. Some of the terms will be unfamiliar to those who are not trained in medical fields.

*This article is from the chapter on treatment in the 3rd edition of Fragile X Syndrome: Diagnosis, Treatment, and Research edited by Randi Jenssen Hagerman, M.D. and Paul Hagerman, M.D., Ph.D., to be published May 2002. It is included with permission from The Johns Hopkins University Press. References to other chapters refer to chapters in the book which are not included as part of this website.

The complete 3rd edition of Fragile X Syndrome: Diagnosis, Treatment, and Research can be ordered from the National Fragile X Foundation by calling 1-800-688-8765 or from The Johns Hopkins University Press at 1-800-537-5487.

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