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• U.S. Congressmen Form Fragile X Caucus

  The U.S. Congress has taken an important step forward toward recognizing the public health and scientific significance of the conditions associated with a mutation of the Fragile X gene. Congressmen Hare, Harper and Delahunt's formation of a Fragile X Caucus signifies that Congress understands that unlocking the secrets of Fragile X will help lead to more effective treatments not only for fragile X syndrome and associated disorders but also for autism, Alzheimer's, Parkinson's and other causes of developmental disabilities and neurodegenerative conditions. ­ Jeffrey Cohen, Chair, Public Policy Committee, NFXF 
  “DEAR COLLEAGUE” LETTER FROM CONGRESSMEN HARPER, HARE & DELAHUNT – July 2009
  PRESS RELEASE FROM THE OFFICE OF CONGRESSMAN PHIL HARE-March 2009

• July 8: Fragile X Resolution Introduced - We Need Your Help
• Advocacy Action Alert 3-16-09 ACT NOW!
  March 2009 Action Update
  Advocacy Update 3-4-09 2009 Advocacy Day Information
  Advocacy Update 9-6-07 Largest Ever NIH Fragile X Grant Awarded

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• The Advocacy Agenda of the National Fragile X Foundation
  

• Read Public Policy Updates from recent editions of the Foundation Quarterly



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Contact our Washington Team

Visit the THOMAS World Wide Web site at the Library of Congress 
Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public, a Library of Congress team brought the THOMAS World Wide Web system online in January 1995, at the inception of the 104th Congress. Virtually anything you want to know about what Congress is doing and how it's accomplished can be found at THOMAS.

The new National Fragile X Public Health Program
at the Centers for Disease Control
National Center on Birth Defects and Developmental Disabilities

NIH Research Plan for Fragile X Syndrome and Associated Disorders