banner text

  Home > Public Policy/Legislative Advocacy

TELL A FRIEND


 

Public Policy/Legislative Advocacy

 

 

 

 

 

 

 

 

 

 



Photo Gallery
Advocacy Day 2010 Video

Advocacy Day Training Binder Now Available - Feb. 16, 2010

All 2010 Advocacy Day participants are encouraged to review the training binder in advance of your arrival in Washington, DC. You will be provided with a hard copy at the March 2nd training. Please make note of any questions to address during the training.

WELCOME MESSAGE and Public Policy Blog

Welcome Message-Learn more about and join the effort.
Public Policy Blog

NEW - Advocacy Updates and Alerts
Legislative Action Center-Write to and learn about your Members of Congress
Register as a Fragile X Advocate to Receive Regular Advocacy Updates and Action Alerts
The Advocacy Agenda of the National Fragile X Foundation
Read Public Policy Updates from recent editions of the Foundation Quarterly
  • Read Public Policy Updates from recent editions of the Foundation Quarterly
  • FX Quarterly Logo

Learn how a Bill becomes a law
Contact our Washington Team

Contact our Washington Team

Visit the THOMAS World Wide Web site at the Library of Congress

Visit the THOMAS World Wide Web site at the Library of Congress [Link to THOMAS Home Page]
Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public, a Library of Congress team brought the THOMAS World Wide Web system online in January 1995, at the inception of the 104th Congress. Virtually anything you want to know about what Congress is doing and how it's accomplished can be found at THOMAS.

NIH Research Plan for Fragile X Syndrome and Associated Disorders
Senator Stabenow, Josh Cohen Kim Young, Laureen Majeske, Josh Cohen, Senator Stabenow, Jeffrey Cohen, Arlene Cohen

Senator Debbie Stabenow of Michigan is presented with the NFXF Champion Award for her leadership and support of Fragile X funding.

L-R Senator Stabenow, Josh Cohen
L-R Kim Young, Laureen Majeske, Josh Cohen, Senator Stabenow, Jeffrey Cohen, Arlene Cohen

George Radanovich and John Harrigan

On behalf of the Foundation and its California Central Valley Fragile X Resource Group, John Harrigan, Board President (right) presented an award to Representative George Radanovich of California in appreciation for his leadership of our legislative agenda in 2004 and again in 2005.

Parent Holly Roos presents NFXF award to Congressman Phil Hare of Illinois.

Specter with Parker and Cohen Harkin with Cohen and Judges

Senator Arlen Specter of Pennsylvania received the Congressional Champion Award" from Bill Parker (left) and Jeffrey Cohen.

Senator Tom Harkin of Iowa receives the "Congressional Champion Award" from Jeffrey Cohen (left) and Joe & Tricia Judge.

 

Top of Page